Claire's
Journal -- 32th Month |
||
November
10 |
Mom went to work today, and 2 hours later went back home, she's coming down with something and wanted to catch it early. Tomorrow is a holiday so maybe the long weekend will allow her to get some much needed rest. Fingers crossed. | |
November
9 |
Claire had PT today, OT cancelled. She worked well giving lots of nice smiles and really enjoying her therapy today. Worked on sitting and propping on her knees and did really well, her PT was very pleased with the progress she is making with sitting and using her arms to keep herself upright. | |
November
8 |
Claire's
school had their fall festival tonight. | |
November
7 |
Claire
slept through the night, fussing once but going back to sleep.
Mom heard her cough and went in to turn off the ceiling fan
and she was quiet the rest of the night/morning. | |
November
6 |
Claire
slept well and was up with dad as mom took the sibs off to
8am mass. They were all up and decided to just go early and
get back early. Dad had a busy day planned, so he opted to
work while home with Claire... but work meant giving her meds,
spending time trying to find out where mom now keeps the syringe
to measure the meds, find the bulb syringe to clean out the
little Peanut's nose, making food and feeding her, etc. Claire
kept him busy and mom got an earful about how she moved stuff
from where they usually were... so mom insisted he needed
to give her meds more often and all that. .. then she laughed. | |
November
5 |
Claire
slept pretty well. Mom had her up fairly early as they had
a flag football game to get to, but she needed a bath first.
At the game, Claire hung out with her aunt and drank 5os of
formula (flavored with bananas) -- slurped it right down!
Afterwards, Claire worked on some chicken and sweet potatoes.
Family came over everyone left for the football game, leaving
Claire and her big sis with a terrific babysitter. They seemed
to have a good time, Claire polished off about 10oz while
mom was gone, and then more when they got home. | |
November
4 |
It
was going to be a long day as mom didn't have a sitter lined
up for the kids' school auction/fundraiser tonight. Mom and
dad had never been so it was something they were looking forward
to, bought the tickets and all, but mom was bummed. | |
November
3 |
Mom had a busy day at work and Claire had a good day at school. Her eating has picked up immensely as has her appetitie and mom is very pleased. | |
November
2 |
Claire slept great and got up and ate well, then back for a morning nap and up again in time to eat a bunch more food before PT and OT. She was all smiles and worked hard for PT and ate hard for OT too! She spewed (spitted) back some food at her therapist, but overall ate and ate well and fairly quickly. Mom was pleased with all the progress she's been making at her PT and OT sessions. Mom heard that once Claire turns 3, the system changes for her, and getting therapy will become very difficult and it is a scary thought to think that Claire may not have the opportunities, maybe even digress once she turns 3. sad. | |
November
1 |
Claire
slept through the night, fussing a couple times, but not enough
to keep her awake for more than 30 seconds. She was up bright
and early and ready to eat. She took her meds well and needed
a bath, but that would have to wait until evening. She drank
3oz of formula/bananas and then off to school with grins.
Mom kept reminding her that she couldn't smile AND eat at
the same time, her brother just laughed, and she didn't care
for eating as much as for smiling this morning. Guess she
was thinking about how cute she looked last night in her Clairebug
costume. | |
October
31 |
Happy
Halloween everyone! | |
October
30 |
Claire
slept great last night. | |
October
29 |
Claire
slept great, was up once and fussed but evidently dad went
in to check on her, he resituated her and she went back to
sleep. Her aunt was sleeping in the room with her and said
that Claire had a nice snore. :o) | |
October
28 |
Claire is sleeping well. Family coming into town today so mom took off half-day to get some cleaning and grocery shopping done. Later in the evening, big brother got ready for his middle school Halloween dance and dad left to go sing at a Halloween costume party. Mom went as a queen and dad as her knight. The party was to benefit Big Bend Hospice and everyone had a terrific time. Some of the costume prizes were trips to Disney (1 day pass for 4 people) and Bush Gardens, among some other nice prizes. If you want to see a pix of mom an dad in costume, just email Claire and she'll get a copy to you! | |
October
27 |
Claire is sleeping well, her antib's seem to be kicking in and she's eating pretty well, tho not as well as mom likes. She's mom's little work-in-progress. | |
October
26 |
Claire had her followup dr appt today, after OT and PT (PT was cancelled as therapist was sick). A pretty good day, dr said she looked better and gave her another shot of antibiotic and put her on an oral antib. | |
October
25 |
Claire
spent much of the night coughing and gagging so mom had enough.
In the morning, they got an appt and in the afternoon went
to the dr. She had a fever of 101+ (rectally) and he gave
her an antib shot, noting that she was having a hard time
keeping food down, so an oral antib wouldn't work so well.
Mom was frustrated, as she just noticed Claire's was warm
when they got to the waiting room at the drs office and didn't
have any fever reducers. By the time the got home, and before
giving Claire any tylenol or motin, mom took her temp and
it was around 99, so mom didn't give Claire anything and was
believed her body was doing what it needed to go get better
on its own. Mom doesn't like giving Claire any extra meds
if not absolutely necessary. | |
October
24 |
Claire
slept through the night. Mom too. | |
October
23 |
Claire slept well at night and was up in the morning with 'startles' (mom thinks post seizures) and followed with throwing up... they went to church anyway, dad was apprehensive, but mom knew she'd just fall asleep during church, and Claire did. She slept the entire mass and visited a bit afterwards then home for food and nap. She developed a fever in the afternoon and even with motrin, they kept coming back. Mom thought that was unusual, so in the evening tried another bottle of motrin, and that dose got and kept the fever down much better. Claire and mom were up late as mom wanted to get that last bit of food in her before bedtime, Claire ate really well, but threw up some of it as mom was putting her down... around midnight. | |
October
22 |
Claire
slept well and was up early. Mom was up too as Claire was
fussing. She drank about 5oz of pedialyte and off they went
to big brother's flag football game. Claire enjoyed the fresh
air and slept much of the time there, then back home for a
big feeding and much rest in her crib. Mom listened to college
football on the radio and set up stats for big brother to
look at as the game progressed. Claire's brother was listening
to the game on the internet (streaming audio) and mom was
in the bedroom feeding Claire listening to the radio. Mom's
radio was about one minute faster than the Internet feed,
so she told Big brother that the team scored and he didn't
believe her... then was astounded (mom's a genius, but predicting
a score before it happens?). Mom had fun with that one!! | |
October
21 |
For the second night in a row, Claire slept through the night without so much as a snore or a cough. Mom slept too, for the most part. Mom woke Claire and she drank 3oz of pedialyte and off to school for breakfast. She was happy, but hungry when she arrived and her teacher was getting her food ready as mom left. | |
October 20 | Claire
slept well through the night. She sleeps with the O2 blowby
and the humidifier on -- no ceiling fan. She had a good day, dad fed her in the morning after meeting with the countertop guy, and then mom took her to school. Dad picked her up later in the day for her RSV shots... she had two as is customary for the first shot of the season. She will continue to have one shot every month until March. Poor dear. Mom hadn't realized that dad didn't take her back to school, and mom dropped in to pick her up only to find she wasn't there... mom didn't know what to do with herself... go shopping? heheheh. She went home. Claire had a good evening, eating as soon as mom got her food ready (when she got home) and then taking a nice afternoon nap... tired Baire. Mom woke her for meds and tried to feed her more, but she refused so they cuddled for a bit watching some tv and then off to bed. | |
October
19 |
She
ate well this morning and drank only an oz of pedialyte and
when back to bed. Mom woke her to feed her more, and by noon
she had close to 10oz, then off to therapy. | |
October
17 |
Claire
slept through the night. Mom was comforted by her snoring,
but she seemed to be breathing well and not coughing or congested.
Yeah. | |
October
16 |
Claire
was up coughing again. Mom was okay with it as she was getting
used to missing her good sleep. | |
October
15 |
Claire
was up coughing again... but all were in bed soon afterwards.
Making sure she is warm and the air is moist. | |
October
14 |
Claire
was up in the middle of the night coughing again. Mom put
a blanket back on her and she went back to sleep. | |
October
13 |
Claire
was up around 4am, coughing. Mom tried to feed her a little
bit thinking maybe she was hungry and wanting her hands, but
she wasn't interested in eating. After a couple bites, mom
put her back to bed and covered her back and eventually she
stopped coughing and they both got back to sleep. | |
October
12 |
Claire
was up around 2:30am. She was coughing her loose cough and
mom went to check on her to see what she could do. Usually,
Claire was on her back and mom just needed to put her on her
side but Claire was on her side AND coughing. Something mom
hadn't seen. The ceiling fan wasn't on, as the house was relatively
cool, and often the fan dries her up. The humidifier was on
and the O2 had water in it too. Mom decided to rub her back
for a moment to let her know she was there, and then cover
her with a blanket, especially on her back, to keep her warm,
and mom went back to bed to listen in. A couple of coughs
later, Claire was quiet and back to sleep - yeah. | |
October
11 31 months |
Claire
was up in the morning, around 4:30am, coughing. Sure enough
she was on her back, so mom moved her around and they both
went back to sleep. |
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